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Colchester boy given £1.8m drug has new lease of life
Contributed Edward was one of the first children in England to be given the gene therapy Zolgensma through the NHS A five-year-old boy who received the world’s most expensive drug as a baby has made “incredible progress” and can walk independently, his mother said. Edward, from Colchester, has spinal muscular atrophy (SMA) which means he…
GPs told to guarantee same-day appointments for urgent cases
This is not the first time a Labour government has tried to set a target for immediate access. In 2000, a 48-hour target was set, but by the 2005 election campaign it was causing controversy, with patients complaining that they could not book an appointment in advance because so many were being held back for…
Oliver, three, is wonderful after world-first gene therapy
Three-year-old Oliver Chu has amazed doctors and his parents after he became the world’s first patient of a pioneering gene therapy to treat Hunter syndrome. Hunter syndrome – or MPSII – is a rare, inherited condition that causes progressive damage to the body and brain. The effects are sometimes described as a type of childhood…
Maternal Health Care At Risk As Federal Funding Uncertainty Continues, CT Official Says | CT News Junkie
Social Services Commissioner Andrea Barton Reeves. Credit: Doug Hardy / CTNewsJunkie HARTFORD, CT — As the Trump administration continues to overhaul federal spending and disbursements to the states, Connecticut officials are stuck in a holding pattern, trying to make their dollars stretch further. The appropriations, human services and public health committees convened at the Legislative…
